It’s now late October 2024. I apparently have a diagnosis. It’s a lot to wrap my head around. I feel overwhelmed most days. My first round of treatment is scheduled Thanksgiving week. I wish I could start sooner, but there… Continue reading

In the spring of 2024, I started losing faith in my original dermatologist. With my inconclusive biopsies and my ongoing symptoms, she gave me a tentative diagnosis of Erosive Oral Lichen Planus. There are no FDA-approved medications for the disease.… Continue reading

A first attempt with biopsies The oral biopsies I had done in January 2024 should have opened a door to answers and understanding of my medical condition. Sadly, they had the opposite effect; sending me deeper into a spiral of… Continue reading

Existing as a medical mystery for sixteen months has been a nightmare. I am hopeful I finally have a definite diagnosis, but I haven’t quite allowed myself to put full faith in that answer. I would love to confidently start… Continue reading