How Weird!
Life with a rare disease is bizarre. I went from totally healthy and vibrant to devastatingly ill in the flip of a switch. It just happened one day – without any clear cause or reason. I’m trying to process what happened to me and trying my best to find value in my one precious, painful, messy life.
-
Life as a Medical Mystery – Part 1
Existing as a medical mystery for sixteen months has been a nightmare. I am hopeful I finally have a definite diagnosis, but I haven’t quite allowed myself to put full faith in that answer. I would love to confidently start dealing with my new reality, but this isn’t my first go-round with a diagnosis. I’ve
-
Weird: How it all started
I never thought I’d be unique in such an awful way. I never expected I’d baffle so many doctors. I had read about other people’s medical mysteries, but becoming one was definitely not on my existential bingo card. I had no idea my life would get so WEIRD. Throughout my life, I had always enjoyed
Subscribe
Enter your email below to receive updates.
Contact Me
Your message has been sent
Autoimmune biopsies chronic illness diet exercise fitness food grief health healthcare infusion infusions insomnia life lesson Medical Mystery mental health misdiagnosis mouth sores mucosal blistering Nutrition patience pemphigus prednisone PTSD rare disease rituximab self advocacy steroids trauma treatment
How Weird 